Edward had an incomplete spinal cord injury with a little bit of upper body function before his first spinal cord stimulation treatment, which he had about one year ago in Thailand. He had a complete loss of volitional motor control in his lower limbs. In his interview with Dr Nasir, he looked into his progress in the last year, and reviewed his recovery since his second treatment in Mexico.
Please can you introduce yourself?
Edward, you are basically the third patient in the world to receive double epidural stimulators for spinal cord injury. What are your feelings and what results did you see from the first treatment?
Before you decided to go for your first treatment in Thailand, did you have any doubts in your mind?
What are the major differences or you know, similarities you would like to highlight in terms of your treatment for the first stimulator and the second stimulator?
Did you feel well informed and like the communication was good?
Ultimately, what are your goals from the double epidural stimulator implantation, from your point of view?
You have been working with the stimulator for a year now, do you feel like it has improved your quality of life?
Can you walk us through a typical day here for you? What kind of activities do you go through? And what does it feel like from a patient’s point of view?
What kind of improvements did you see, just a short list of improvements, from the cervical stimulator?
Is there any message you would like to give to spinal cord injury patients?
I think a lot of people have a lot of doctors telling you that you have to find out how to live the rest of your life injured as you are. So if you really want to improve your life, and have a chance at a better life, then you should get epidural stimulation. It'll help you. The people that get it I think all of them are fighters because they're willing to go to another country to get another surgery and pay money, just for a chance to get better. So, I think everybody that's going already has the attitude of ‘No, I'm not going to do what the doctors tell me’ So…keep fighting!